Schedule

2026 Cherokee Nation
Rare Disease Summit

	Wednesday, October 7th
9:00 a.m. – 9:30 a.m. Central	Registration & Breakfast Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
9:30 a.m. - 10:00 a.m. Central	Opening Remarks Canaan Duncan – Deputy Secretary of State Chuck Hoskin Jr. – Principal Chief Bryan Warner – Deputy Principal Chief Beth Harp, DO, MHA – Chief Medical Officer Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
10:00 a.m. - 10:20 a.m. Central	Chronic Hope Clay Smith, MSIO Oklahoma
10:20 a.m. – 11:05 a.m. Central	Keynote Address Bridging Stories and Statistics: A Patient-Centered Approach to Rare Disease Research Sydney Martinez, PhD, MPH Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC
11:05 a.m. – 11:15 a.m. Central	Break
11:15 a.m. – 12:15 p.m. Central	Lunch Cherokee Nation Outpatient Health Center (CNOHC) 1st Floor South Wing Resource Fair Cherokee Nation Outpatient Health Center (CNOHC) 1st Floor South Wing
12:15 p.m. – 1:00 p.m. Central	Breakout Session 1A Rare Disease Empowerment & Advocacy Leah Campbell & Sky Collins Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
12:15 p.m. – 1:00 p.m. Central	Breakout Session 1B Food as Medicine Marianna Wetherill, PhD, MPH, RDN/LD, DipACLM Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
12:15 p.m. – 1:00 p.m. Central	Breakout Session 1C Oklahoma Newborn Screening Program Shari Arceneaux, RN Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
1:00 p.m. – 1:15 p.m. Central	Break
1:15 p.m. – 2:00 p.m. Central	Breakout Session 2A Navigating Rare Disease Healthcare Lacy Eidson, BSN, RN & Jazmyn Stonecipher, BSN RN Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
1:15 p.m. – 2:00 p.m. Central	Breakout Session 2B Genetics and Rare Disease Danielle DeMarzo-Burdsall, MD, FACMG Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
1:15 p.m. – 2:00 p.m. Central	Breakout Session 2C Pediatric Hematology/Oncology Rare Disease Meagan McCall, DO Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
2:00 p.m. – 2:15 p.m. Central	Break
2:15 p.m. – 3:00 p.m. Central	Breakout Session 3A Nutrition for Rare Disease Management Tonya Swim, MBA, RD/LD Cherokee Nation Outpatient Health Center (CNOHC) Conf. 2A/2B
2:15 p.m. – 3:00 p.m. Central	Breakout Session 3B Reversing Systemic Inflammatory Diseases with Intense Lifestyle Medicine Prashant Kaushik, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 1
2:15 p.m. – 3:00 p.m. Central	Breakout Session 3C Huntington's Disease Smaranda Galis, MD Oklahoma State University Center for Health Sciences at Cherokee Nation Lecture Hall – Floor 3
3:00 p.m. – 3:30 p.m. Central	Break
3:30 p.m. – 4:00 p.m. Central	Closing Speaker Panel & Remarks Moderator: Dr. Beth Harp, DO (Chief Medical Officer) Panel: Prashant Kaushik, MD Smaranda Galis, MD Sydney Martinez, PhD, MPH Cherokee Nation Outpatient Health Center (CNOHC) Community Room ABC